My name is Claire, I'm a 37 year old, married, mum of two. After years of numerous referrals, appointments and tests; doctors have always been a bit baffled by me. Now, after many years struggling, but not knowing why, I now have a piece of paper with a diagnosis written on it - Ehlers Danlos Syndrome. So there it is in black and white, but what happens next?
After my diagnosis I had loads of questions buzzing around in my head - I spent literally days online, researching EDS, trying find out more. I strongly believe there are many, many people worldwide that are suffering with EDS symptoms that remain undiagnosed. Sadly it seems pot luck whether people are lucky enough to see Medical Professionals who actually understand EDS and correctly diagnose it.
Since my diagnosis (and recent, rapid, deterioration physically), I decided that I need to embrace this condition - it isn't going to go away, I'm not going to get better, I can't be cured, I have this for life!
So in a bid to be more positive about the future, and focus on what I can do, instead of everything I can no longer do, I set up Zebra Stitches! I have started making a variety of homemade bunting and home decor accessories to sell online (you can visit my store and see what I've been making here at www.etsy.com/uk/shop/zebrastitchescrafts).
I've decided to embrace EDS, to learn to manage the condition the best I can and to try and build a positive future for myself (and my family) despite the challenges I face now and will face in the months and years ahead. So join me as I develop my sewing and crafting skills, as well as raising awareness of EDS and also Autism and ADHD which are in my family too.
You can also find me on ...
Facebook https://facebook.com/zebrastitches
Instagram https://www.instagram.com/zebrastitchescrafts
Twitter https://twitter.com/zebrastitches00
Thanks for reading!
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